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Friday, January 27, 2012

Clinic Day

Today we had clinic again, not much is new Hailey got her Vincristine (chemo) push, and her Methotrexate (chemo) through I.V. and as usual her Zofran through I.V. for nausea.

Playing in the playroom before we're called back.
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Hannah took this one of me and Hailey while she was getting her chemo. All the girls got pillows and blankets that were handmade and donated to the cancer center, they were trilled to pieces! Hailey has hers and it says "God Loves Me", how cute is that?
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Hannah and Taylor hanging out on the bed watching a movie.
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She's got a headache tonight along with some nausea and is having diarrhea so I hope it's just from the meds and not that she's coming down with something. (Our hospital bags are always packed though)


Her oncologist went over the next stage of treatment for her. She'll finish up her Interim Maintenance in a few weeks which lasts for 56 days then she will begin Delayed Intensification which will last for 56 days and with that will be a new regimen of drugs.

She'll be getting her Dexamethasone which is her steroids which she did pretty good on as most kids turn into screaming devils from what I heard but Hailey did really well on them for the most part, I just don't look forward to her face all fattening out again and her eating day and night.

She will still be getting her Vincristine (chemo) but will also be getting Doxorubicin (chemo), Pegaspargase(chemo), Methotrexate (chemo) in her spinal fluid, so more spinal taps coming up again, Thioguanine (chemo) and finally Cytarabine (chemo). I'm tired just writing all that and to think all these drugs going through my child's body, it's TERRIFYING. That's all the drugs that will be given to Hailey and some of them, up to four different kinds given in one day at clinic.

Give your kids big hugs and kisses tonight and pray your child never has to go through this, it's a parents worst nightmare.

We've just been hanging around the house a lot as it's that time of year for flu season so I don't want Hailey out and about too much. We've worked on lots of Pinterest crafts and stuff so I'll post pics soon if y'all want to see what I've been making. We did do a story time craft at the library and it was about dragons and knights and princesses so the girls made these shields which they thought were pretty cool.
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We also had a visit by 2 of the sweetest ladies in the world who heard about the girls and wanted to make them dresses. Well, they did the smocking on the fabric and I will sew them into dresses but the girls absolutely LOVE them! So, I'll be working on getting the dresses done next week. And the funny thing is my grandmother use to do smocking and had made me smocked dresses when I was little, well by the time my grandmother got moved closer to me she was too old to teach me how to smock but I had always wanted smocked dresses for the girls. I had even bought the girls a couple of smocked dresses in Vietnam when we adopted them and now I just can't afford them esp. with 3 of them to buy for so how cool is that?

We also got free tickets from the cancer center to a character breakfast in March for me to take the girls to. They are suppose to have quite a few Disney Princesses there along with Pooh, Peter Pan and I'm not sure who else. I just hope Hailey will be healthy enough to go and not be in the hospital.

3 comments:

Jessica said...

I love that last picture of the girls, they all look so happy.

Sarah said...

Trish, I don't know how you keep track of all the meds. I'm praying that your little sweetheart stays healthy and happy.

Debbie Sauer said...

You are one amazing Mom. God give you strength to continue doing what you are doing. Your girls all look so happy. Blessings